Em's Quarantine Crafts

My name is Emma, and I started this project for two main reasons; to fill my time during the COVID-19 pandemic, and to spread awareness for Ehlers-Danlos community. I am a high school senior recently diagnosed with hypermobile Ehlers-Danlos (you can read more about this on the homepage). As a young child, I always enjoyed doing the typical "party tricks" like sliding my shoulders out of the socket, putting my legs behind my head, and other silly tricks. 

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I was first diagnosed with hEDS in January of 2020, after a year-long struggle with my shoulder dislocating spontaneously due to a single injury while rowing. Despite no visible tear in my shoulder, I underwent multiple surgeries to attempt to fix the dislocations. After my third surgery, an open capsular shift, my right shoulder seems to be fixed. 

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Prior to my shoulder injuries, I was an extremely active and motivated athlete, participating in both swim and rowing. Ending both of these sports abruptly, and subsequently losing many of my friends was overwhelming. This past year tested my physical and mental strength. I am so thankful for my loved ones and doctors who support the never-ending health journey. 

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But I am not just an 18-year old living with EDS. I hope to pursue veterinary medicine in college at West Virginia University, specifically to work with large animals (horses, cows, etc). I also enjoy gardening, baking, and hanging out with my dog, Bella. 

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I am very, very new to this community, so I encourage you to read more about EDS on Ehlers-Danlos.org or to do your own research! Because EDS is an "invisible" condition, it can be extremely difficult to connect with other people sharing similar experiences. So please reach out through my "contact" form if you have any questions, or just want to talk!